A Day In The Life of Zachary

So this is all the medicine that Zachary takes on a daily basis. He takes some in the morning, some in the evening and some of them at both times. I really need to get this all written down so that if anything ever happened someone else would know when and what to give him.

Here is Zach getting his nebulizer treatment. When he doesn't feel good or when he wants to be difficult he makes me sit and hold him and the nebulizer. Most of the time he does it all on is own. Ryan and Emalee have even learned how to hook up his nebulizer and hook him up in his vest. I am so lucky to have such good kids that are willing to help their brother.

Zachary's Lexus

So this is Zach and his $14,899 machine. The machine vibrates him and helps loosen the mucus in his lungs. He does this machine for 30 minutes every morning and 30 minutes every night. We refer to the machine as his Lexus because for the amount of money it cost it should have leather seats and a GPS System with it. Believe it or not when he is really tired he will sleep through the whole 30 minutes. This Lexus is far from quiet and my house usually sounds like it is getting ready for take off when the machine is on and yet Zach can sleep.

Zachary and Kindergarten

Zachary has been in Kindergarten for an entire month already I can't believe it. So far he has done very well. Only 1 trip to the school nurse so far and no missed days of school. He is LOVING being in all day school although he comes home pretty tired most days. Our biggest issue is that he won't eat his lunch and it doesn't matter what we give him he just won't eat. So far he has lost about 1.5 pounds which is not a lot but on Zach every ounce counts. So we are fighting that battle with him. He says he's not hungry but I can't imagine him going all day and not getting hungry. So we will have to see what they say when he goes into the CF Clinic in a couple weeks. Maybe they will have an idea that we haven't tried yet.