Tuesday, September 9, 2008

Update On Zach

Just thought I would update on Zach. So as I mentioned before Zach had several different tests run last week to find out finally what is really wrong with my sweet boy. On Friday the Doctor called me back for the first time. Never a good sign when the Dr. is out of town and calls you. So one of the tests that Zach had done was for Cystic Fibrosis. I was positive it was not going to be that and almost didn't take him in for the test. His results came back above what they should be for the test to be negative. So as the doctor was explaining to me over the phone, I was trying really hard not to totally freak out what we needed to do next. She had already contacted the Pulmonoligist at the hospital and talked to them about Zach. She said they wanted to retest him in 2 months for this due to the fact that several other things came back positive on him. They are hoping that his other levels are throwing everything off. To make a long story very short he is allergic to Wheat, Milk, Egg Whites, and Soy. So what do I feed him-- my question exactly.

The doctor called today again to tell me that she has an appointment for me with a new Allergist and a Pulmonoligist set up for me on the 26Th of this month. Anyone who has ever tried to get an appointment with a Dr. at Primary Children's knows this is pretty quick service. She also gave me the information to get with a Dietitian at the hospital. That appointment is set up for the 23rd. So we are just taking this all one day at a time. I have said all along I could handle whatever was wrong with him as long as we finally knew what it was. Well now we know and so we are trying to deal. I am just praying that when we retest in 2 months that he comes back in normal range for the Cystic Fibrosis.

I have always known that there was something not right with Zach. Even when everyone tried to convince me that he was just fine. I always had a feeling that there was something wrong. So mothers intuition was right and I am very thankful I kept fighting and finding doctors until I got an answer. So for all the mom's reading this listen to your heart because as mom's we know our kids better then anyone else.

Wednesday, September 3, 2008

Zach

Zach is not to interested in having his picture taken
can you tell!!!
Here we finally got a good one. Only took 12 pictures.
All set for Preschool.

Zach started his last year of Preschool today. He was very excited and had his backpack completely loaded with stuff he didn't need. ( I cleaned it out before he got out of the house with it.) Yesterday Zach FINALLY had his appointment with his new Doctor up at Primary Children's. We really liked her and she seems to really want to get to the bottom of what is going on. It's only taken us 5 1/2 years to find a doctor to help us. He had some blood work done and is going in for another test tomorrow. She thinks it could be one of 5 or 6 different things. So we are just going to start narrowing them down. I am just hoping and praying that we really get an answer this time and that every test doesn't come back inconclusive. Which has always been the standard answer with every other doctor. So I will keep you updated as to what we find out. I really think this Doctor won't give up until we get an answer!!! YEAH!!!